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Internet Sites:

• General Information About Spina Bifida
Provided by the National Information Center for Children and Youth with Disabilities.
http://www.nichcy.org/pubs/factshe/fs12txt.htm

• March of Dimes – Spina Bifida
This information sheet includes answers to frequently asked questions about spina bifida.
http://www.marchofdimes.com/professionals/681_1224.asp

• Learning Among Children with Spina Bifida
Includes an overview of the research and information on the learning strengths and weaknesses of children with spina bifida.
http://www.waisman.wisc.edu/~rowley/lollor.html

• Information on Spina Bifida and Hydrocephalus
This site was developed by the staff of SBH Queensland as a reference for schools with children with spina bifida. It includes information on mobility, learning, social skills, handwriting, and more.
http://www.spinabifida.org/SBH%20Info.htm
 

Organizations:

• Spina Bifida Association of America
4590 Macarthur Blvd NW, Suite 250
Washington, DC 20007-4226
800-621-3141 or 202-944-3285
Fax: 202-944-3295
Email: sbaa@sbaa.org
http://www.sbaa.org