Internet Sites:

• Special Child – CHARGE Syndrome
This article includes information on CHARGE Syndrome, its diagnosis and treatment, and personal stories from parents.
http://www.specialchild.com/archives/dz-014.html

• The Family Village Library – CHARGE Syndrome
http://www.familyvillage.wisc.edu/lib_chgs.htm
 

Discussion Groups:

• CHARGE Syndrome List
The CHARGE Syndrome List is for anyone that has anything to do with a child with CHARGE, parents, caregivers, doctors, therapists and teachers.
Subscribe to this list at the following URL: http://www.geocities.com/Heartland/1220/list.html
 

Organizations:

• Charge Syndrome Foundation, Inc.
2004 Parkade Boulevard
Columbia, MO 65202-3121
Toll-free: (800) 442-7604
Phone: (573) 499-4694
Contact: Marion Norbury
Marion Norbury (Executive Director): marion@chargesyndrome.org
Meg Hefner (Genetic Counselor): meg@chargesyndrome.org
http://www.chargesyndrome.org/